 the medici family |
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MARK, ANNALEE, OLIVIA & EVA |
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the medici family |
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MARK, ANNALEE, OLIVIA & EVA |
 MEDICI,
OLIVIA MARY January 6, 2001-November 12, 2006. On Sunday, Nov. 12 at
9:04 a.m., Olivia lost her lifelong battle with Sanfilippo type A (a
form of mucopolysaccharidosis). Olivia passed away peacefully in her
mother's arms at Doernbecher Children's Hospital at OHSU. Olivia was
just shy of her 6th birthday. Olivia was born Jan. 6, 2001, to Mark and
Annalee Medici of Tigard. Olivia has a 3-year-old sister, Eva, who was
also born on Jan. 6, 2003. Olivia was diagnosed with a genetic disease,
Sanfilippo type A (MPS III). On Jan. 6, 2005, Olivia became the 15th
child in the world to receive an umbilical cord stem cell transplant for
her disorder at Duke Medical Center in Durham, N.C. Olivia lived life to
the fullest. Her infectious smile, giggle and piercing eyes will be
missed by all. She loved coloring, Elmo DVDs, going for long rides in
the car with mom and dad, and spending time out at her
great-grandparents vineyard in Newberg. Most of all Olivia loved her
little sister, Eva. She loved to play with Eva and followed her wherever
she went. Eva will forever miss Olivia's companionship. Mark and Annalee
would like to thank everyone who has touched Olivia's life. Most
notably, our family and friends who have supported us through our entire
journey. We would also like to extend our gratitude to Olivia's team at
OHSU, led by Dr. Linda Stork, and Olivia's team at Duke University, led
by Dr. Vinod Prasad. We will be eternally grateful for their love and
support of our beautiful daughter. Olivia is survived by her mother and
father, Mark and Annalee Medici; her little sister, Eva; and a large
extended family which includes the entire Medici, Stickel, Klein and
Siemion families. A vigil Mass will be held at 6:30 p.m. Friday, Nov.
17, in St Anthony Catholic Church, 9905 S.W. McKenzie, Tigard. A funeral
service will be at 12:30 p.m. Saturday, Nov. 18, in the church. For more
information and donations, please go to www.oliviaswish.com.
Oliviaswish is a non-profit 501(c)(3) organization designed to help aid
the fight and raise awareness of Sanfilippo type A.Published in The Oregonian on 11/16/2006.
OLIVIA'S WISH Olivia Medici is the daughter of my friend Annalee, and she was diagnosed with Sanfilippo Syndrome in November 2004. They have just begun an experimental treatment at Duke University. Please visit her web site, Olivia's Wish, to read more about this beautiful girl and her family.
Our Katie was one of the guests at Olivia's first birthday party in January 2002
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